Devendra Fadnavis thanks PM
Modi for tax relief on life-saving drug for 5-month-old Teera
Great relief for
parents of 5-month-old Teera Kamat, who is suffering from a rare genetic
disease. PM Modi has waived off custom duty worth Rs 6 crore on a life-saving
drug after request from Former Maharashtra Chief Minister Devendra Fadnavis.
Former Chief Minister of Maharashtra Devendra Fadnavis
took to twitter on Thursday to thank Prime Minister Narendra Modi for waiving
off custom duty worth over ₹ 6 crore on a life-saving drug for a girl child,
who is suffering from a rare genetic disease.
Teera Kamat, a
5-month-old infant, from Andheri, Mumbai was diagnosed with Spinal Muscular Astrophy (SMA)
two weeks after her birth on August 14, 2020. According to her parents,
Priyanka and Mihir Kamat, they realised something is wrong with their child
when she started getting restless while drinking milk, and once stopped
breathing.
Spinal Muscular Astrophy is a rare genetic disease
that needs gene replacement therapy. A medicine, called Zolgensma, required for
the treatment needs to be imported from the US and it costs about Rs 16 crore
in Indian currency. The child’s parents had already raised the amount through
crowdfunding, but taxes applicable on its import such as custom duty and GST
comes to over Rs 6 crore which is out of the reach for the parents. Therefore,
the parents had in October 2020 and again in January had sought help from Prime
Minister Narendra Modi.
Recently, Fadnavis, Leader of Opposition in the
Maharashtra state Assembly, had also written to Prime Minister Narendra Modi
and Finance Minister Nirmala Sitaraman requesting to exempt all these
applicable taxes on this life-saving drug.
Finally, the PM has now waived off all the taxes
(approx Rs.6.5 crore) for importing the life-saving drug for Teera.
Expressing gratitude to PM Modi for his humanitarian
act, Fadnavis tweeted on Thursday, “Sincere gratitude to Hon PM @narendramodi
ji for your humanitarian and extremely sensitive approach towards exempting all
the taxes (approx Rs.6.5 crore) for importing the lifesaving drug for Mumbai’s
5-month-old Teera Kamat! I wish Teera a speedy recovery & healthy life!”
Source: https://www.thehealthsite.com/news
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